Monday, August 13, 2012

Biomedical Update Summer 2012


A couple months ago, it was time to get Ethan retested to gauge how he is progressing with his biomedical treatment plan.  This latest round of tests was the most intensive that we have undergone because we completed 4 different tests at the same time. Two of which required Ethan to fast before hand. If you know Ethan, you know that keeping him from eating for the first 3-4 hours of the day is no easy feat. 
Ethan had been exhibiting self-injurious behavior (SIB) for several months.  At Gavin’s 4-year check-up, the pediatrician recommended we have Ethan’s cholesterol checked. He explained that kids who have been treated multiple times with antifungals for yeast, like Ethan, have had their cholesterol levels drop.  Low cholesterol can lead to aggression and SIB in kids with autism.   I ignored the doctor’s suggestion thinking that did not make sense. Over the next few months, I noticed Ethan’s aggression get worse and worse specifically the SIB.  In my gut, I knew that the yeast was back.  I did not want to put Ethan on another round of antifungals, so I pushed those feelings down deep and ignored them as well.  I paid a visit to Ethan’s biomedical doctor who also suggested the cholesterol exam. I decided to do my own research on cholesterol and it turns out, cholesterol is pretty dog gone important.  It is needed for vitamin D synthesis, hormone production, normal cell function, aids digestion, and most importantly, it is needed for normal brain function.  After learning more, I decided it was a good idea to go ahead and get him tested. It was a simple blood test. (you know the one where Dad sits on top of him, pinning him to the exam table, while 3 nurses draw his blood, simple right) Turns out, his cholesterol is indeed low.  We have started him on a cholesterol supplement. After about 3-6 months, we should begin to see big changes in his behavior as a result of his stable cholesterol level.
The next test we did was a comprehensive digestive stool analysis (CDSA).  This test showed us that not only was the doc right about his cholesterol, but Dad was right about the evil yeast clawing its way back into Ethan’s gut.  If you’ve read previous blogs, you know that we have combatted yeast for a couple of years now. We can’t seem to keep it away. Usually, it comes back after Ethan sneaks a food that is not good for him, mostly bread. This time, I’m not sure what allowed it to come back. I think he did get into the bread, but I thought we caught him in time, maybe not.  I know his levels of good bacteria had decreased dramatically.  A healthy amount of probiotics in his gut will combat the invading fungus pretty well.  Unfortunately, Ethan has yet to establish a healthy enough amount of good bacteria.  Ethan had 3 days of IV antibiotics in his first week of life. The problem with antibiotics is they kill good bacteria too. The IV antibiotics pretty much destroyed the probiotics he was born with.  We’ve been striving to get his good bacteria levels up ever since we began biomedical treatment 3 years ago. Yeast will cause all sorts of awful behavior problems from aggression, food obsessions, fogginess, attention problems, and unstoppable hysterical laughter that could go on for hours. Yeast will wreak havoc on the rest of the body. Taking over in the gut, it will begin to destroy the good bacteria that are a crucial part of the immune system. It will cause digestion problems, absorption problems, and a throw off various biological cycles.
The CDSA showed us that despite the yeast, Ethan is beginning to digest his food better. However, he does have trouble breaking down fat and carbs.  While he is digesting better, he still has a poor absorption rate. This can be somewhat attributed to the yeast, but it is also another ongoing problem we are battling.  The final item learned from the CDSA is that a strand of good bacteria was not present in Ethan’s system.  The yeast had eradicated the lactobacillus strand of probiotics.  Ethan has begun a new round of antifungals to get rid of the yeast.  He will continue taking digestive enzymes with meals that will help him break the food down and absorb the nutrients better. We are adding a supplement called acetyl carnitine to help break down fat and carbs.  We started treatment as a result of both tests about a month ago. We have already seen a dramatic improvement in Ethan's temperament as well as an improvement in his language. Those are the first two tests we had ran this time around. This is enough info for now, so I will get into the next two in a separate posting.